Wednesday, May 4, 2016

Young mother with a facial AVM

Last week, I came across this story while scrolling down my facebook feeds.  As you know, I had a Cerebral Cavernous Malformation.  Its a Vascular malformation.  This young mom in this video, has a AVM, which is similar to a Cavernoma, but as opposed to a Cavernoma, who is like a mass of blood vessels on its own, not connected to any other blood vessel in the brain, an AVM is. 
However, AVM, as well as Cavernoma, can happen anywhere on the body! We just don't hear about it often. Of course, depending of where in the body they are, it can be more or less dangerous. 
This beautiful woman has her in her face.  Yes, her face. Mostly her nose, cheek and upper lip.   You can see how beautiful she is underneath that vascular monster! 

I encourage you to take a look at her story, and also go take a look at her GoFundMe page.  The big day is coming really soon for her! She is going to undergo major surgery to remove the entire AVM. That includes her entire nose, part of her face, and her upper lip. She will soon after have reconstructive surgery.   She has waited her whole life for this.  She is scared, but so brave. Tired, but hopeful.

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