I never really saw the need to follow up with one for different reasons:
1) I kinda got used to doctors come in a room, look down at my chart, look up at me and say:
"You had brainstem surgery? Wow you look good, that's amazing."
Following with me sharing a few things that bothers me, and be met with "Well, you could of been totally disabled, or a vegetable! "
I know that!! I am SO grateful that my outcome was no where as bad as I was told it was going to be! I will never take that for granted. Therefore, the issues, aches, and struggles I do have, as difficult as they may be, remind me of how much worse it could of been... so I don't feel the need to go see a specialist to access every ones of these problems.
2) I hate complaining about things that do not have solutions!
#2 is what I told him the reason was, when he came in and asked: "What took you so long? Your heart rate is almost 100 at rest, you must really feel a lot of discomforts!"
I said : "well, I don't like focusing and complaining on things that just are and do not have a solution, so I am trying to move on." He continued: "What if I tell you that there are solutions, and not only stop putting yourself at risk, but you can feel better?"
So I told him I would love to hear what is there to do! I was expecting to hear "Nah, you're good, you are lucky, you are good. Keep doing your best. This is it." So for him to tell me there are things that could help me, i was surprised. There are lots of people out there dealing with a fast heart beat, no matter what brought it on. He told me that the number one reason is usually people not taking good care of themselves, but in my case, there was nothing I could do to make it stop without any medical help, because I am not causing it to myself, but acquired out of my control.
He explained to me that I have Vagus nerve damage that were brought on by both the brain hemorrhages and the surgery. The Vagus nerve is actually the longest nerve in the body. It starts at the brainstem, and goes all the way down behind the vocal cords, to the heart, and other organs, and end in the digestive system.
Instead of explaining what the vagus nerve does, and what kind of problems it creates once damaged, here is some information
""The vagus nerve innervates critical organs, such as the heart and lungs, making vagus nerve disorders serious. The symptoms of vagus nerve disorder can include cardiac, gastrointestinal, and sensory problems. Because this nerve runs from the brain to the abdomen, damage can cause a wide number of symptoms. From difficulty swallowing, some may even experience diminished gag reflex or have a chocking sensation when eating or drinking. Another symptom is a hoarse voice or difficulty controlling the tongue, which can cause slur speech. It can also cause hearing loss, incontinence, cardiovascular and digestive problems.""
However, I don't think mine are "serious". Yet anyway. haha It sure has not stopped me from living my life! Again, I am very blessed that my vagus nerve was not damaged to the point of losing my voice, or losing control of my bowels. Ew, that must be awful! So it may say "making vagus nerve disorders serious", because yes, it can be very serious, but as for me, i guess the most serious, is that my heart was affected more than I even knew.
The condition of having a fast heart beat is Tachycardia
So, the cardiologist put me on some medicine right away that slows down the heart rate. Its a pretty common medicine, but I forget the name. I so dont like taking medicine. I also will have a echo and stress test September 18th. He wants to try the medicine, and depending on how the tests goes, and how well my heart reacts to the medicine, and if it does not cause too many problems, it may be all I need. He said there are surgeries procedures also, but i would think that if I have lived with this "new heart" for 2.5 years and it has not really hurt me other than making me feel like Sh..Poo, I wont need surgery... but I really don't know to what extend my heart needs "help" because I simply didn't push it that far. "That far" is not much at all... I cant do much at all before I start feeling like the world is spinning, feel like I cant breathe and if I don't stop what I am doing right now, I will pass out. SO, I just work slow... I don't do anything strenuous physically. I only have to walk fast for less than 20 seconds to feel my heart racing so hard I can see the beats thru my chest, cant catch my breath, and just feel absolutely awful. So yes, I probably should of seen a doctor before I did, but I dealt with so many other things, and this was just "something else" that I had to deal with that became normal to me. I didn't think it was the sign of some issue that needed medical attention.
Not much makes me nervous anymore... but the stress test kind of scare me, because I know how little I can do. I realize now that if I would of pushed myself further, but somehow my guts told me not to, I could of harm myself. A few times, I wanted to finish a house chores and kept going more than I should of. My heart was beating so fast I couldn't breathe. Just going up to stairs will give me a heartbeat at 160 BPM. I really don't need much physical efforts at all to feel horrible.
If the medicine is not enough, they are different procedures to help a fast heart beat, like Defibrillators, Vagus nerve Simulator, or Heart Ablation.
So, this is my cardiologist update! :) I have to be honest and say I am somewhat excited at the prospect of this issue being fixed and get to feel better! I will never feel the way I did before all of this, but any improvement is a big improvement!
So, Cheer my friends! To your heart's content!