Its been about 6 months since i was diagnosed with the thang. That’s what i like to call it. The thang. i can walk normally again and i do feel better physically, so that’s good. I do have a lot of permanent damage ( i guess that’s what you can call it) but it could be so much worse… of course i stay hopeful that i wont have any massive bleed anytime soon that will cause more permanent damage. Right now, i feel the most consequences in my “head”… memory, processing, the way my brain hear sounds… its been a true, real challenge… but since i don’t talk about it, most people don’t know. When i do try to explain how i feel, and what it does. i am often met with some “oh, im like that too”. or “Oh, i forget everything too”. I know people don’t mean to… but its hurtful. I am not looking for pity or even compassion, but if you ask me how im feeling and i am sharing my struggles… don’t belittle them, encourage me instead. I guess this is why i got to think why should i bother share how i feel even here..
I know that the fact that i dont work anymore has slowed down the
progress of the cavernoma. I am getting more sleep, too. I know this
new lifestyle is contributing big time to me feeling better. It just
depresses me sometimes to be one of those people who cant be very
active. It’s not me… i have always been active and full of energy…
Go ahead… tell me “oh its ok, i’ve never been active, you’ll be ok”. haha
How about we turn the tables around…. i tell you “by tomorrow, you
need to be up at 6am, not sit down all day long until 11pm, workout at
least an hour, and give you a list of all the things i use to physically
do” Its ok, you’ll be ok.. i used to do it!! you’ll be ok.
Christmas is almost here!! I have been good this year
As I should of been all these years, but i took it for granted!! I
finally shipped Christmas packages to my family in Canada, and had
Christmas cards made! That’s 2 miracles. hahaha My Christmas packages
were always at least 4 months late. Yes, you read right…. this is the
first time that i send in time for Christmas. I am so proud of myself.